What are your top tips for managing epilepsy while flying or travelling, especially on long journeys?
Carry your medicine in your hand luggage
Carry your medicine in your hand luggage with a copy of your prescription (and your letter from the doctor if you have one). Keep the medicine in its original packaging. It’s also a good idea to pack a spare supply in your hold luggage, along with another copy of your prescription, in case you lose your hand luggage.
If you often have seizures and are travelling by plane, consider telling the airline about your epilepsy
If you think you might have a seizure on the plane, it can be helpful to tell the airline about your epilepsy. That way, they will know what is happening if you have a seizure and will be able to help you.
Each airline will have different ways to get in touch in advance, or you may prefer to mention it to the cabin staff when you board the plane. You might want to download Epilepsy Action’s first aid information to help with this.
Set a reminder to take your epilepsy medicines at your usual time
If you forget to take your epilepsy medicine, this could make you more likely to have a seizure.
Try to get your usual amount of sleep
Lack of sleep or feeling tired can increase some people’s risk of having a seizure. If you are travelling across several time zones you could be affected by jet lag.
How can travellers with epilepsy manage their condition during travel, including medication schedules and avoiding potential seizure triggers?
I think most of this has already been covered in the previous question. But there are additional considerations for anyone with a Vagus Nerve Stimulation (VNS) device.
Airport security scanners and metal detectors should not cause problems with your VNS. However, the makers of VNS say that to be safe, you should walk through airport scanners at a steady pace, not linger in the area and try to stay at least 40 centimetres away from the equipment. If this is not possible, you could tell the security staff about your VNS and ask for a pat down check instead. Airport staff should avoid using a handheld metal detector directly over your VNS.
Are there specific measures or assistance travellers with epilepsy should request from airlines or travel providers to ensure a safe journey?
This may vary from person to person as epilepsy is a very varied condition.
The Hidden Disabilities Sunflower Lanyard is recognised by many businesses worldwide and by all international airports. These lanyards are a simple tool for you to voluntarily share that you have a disability or condition that may not be immediately apparent – and that you may need a helping hand, understanding, or more time. You can find out more about these here HDS – Global (hdsunflower.com)
